Mia was born in June of 2009. When she was born, everything seemed normal. She seemed like a healthy girl. In September of 2009, everything changed. She was refusing to eat, she was starting to turn pale, and her breathing was deep. We took her to an emergency room, where they told us that it was just bronchitis and for us to go back home and she would be fine; but seeing her so bad, we decided to take her to another hospital. There, they told us that she was really doing very badly and they had to transfer her to a children’s hospital so that they could run the necessary tests on her. And, so, they urgently transported her in helicopter—we would arrive later with the greatest desperation that a parent can feel toward their child. We didn’t know what was going on.
We arrived at the hospital where we were faced with the news that Mia’s heart was not well. She had dilated cardiomyopathy and her condition was so critical that the only hope was a heart transplant. It was the most difficult news for us to hear as parents—only a miracle could save her. From there, they decided to transfer her again to another hospital specializing in transplants in children. There, she was put on the waiting list. She was in such a delicate state that in order to stay alive, she would perhaps need an artificial heart, a Berlin heart.
The months, the days, the hours, and the minutes were eternal. The faith, hope, and love toward our little girl were our strength. Every day was another piece of hope. Just when we thought that all was lost for our little girl, the miracle took place, the Angel we were hoping for arrived. On November 15, 2009, she received her heart thank God. I will never stop giving thanks for that blessing in our lives. Thanks to God, thanks to the parents that God illuminated so that their little one could become a superhero because every smile, every glance reflects that little Angel, may God shower them with blessings. During these past six years, we have watched Mia, the warrior, grow. Having her by our side is a blessing. She is a happy girl. She loves to dance and jump around. She’s unstoppable. She is sweet, and, of course, very mischievous. We give thanks to God for every day that He allows us to see her smile.
Unfortunately, the transplant comes with a lot of medical care that she must receive for the rest of her life, continuous medical check-ups, and risks. Regrettably, one of those risks presented itself in September of 2015. Extra palpitations were detected in her heart. She immediately had a catheterization to find out what was going on. Her arteries were nearly blocked. And the greatest risk was a cardiac arrest. So, they decided to hospitalize her immediately. Everything about her was normal; she didn’t have any type of symptoms. But that’s how it is with this disease: sometimes there are symptoms and on other occasions the first symptom is the cardiac arrest. For the doctors, the only option was another transplant when they saw how advanced her problem was. Once again, she was placed on the waiting list. We, as parents, were once more overcome with anguish.
Despite everything, with her smile and desire to live, she always infected us with her joy and lessened the anguish and strength and hope. Ten months went by. Fortunately, she always remained strong, stable, and as always, with a smile. On January 28, 2016, while I was trying to finish this little story about Mia’s life, I couldn’t find an ending because the future seemed uncertain, her doctor came in and told me that they had a perfect heart for Mia. I didn’t know whether to cry, whether to laugh, or to scream. It’s a difficult emotion to explain because you have so many emotions: joy, sadness, hope, fear. We placed everything in God’s hands.
On January 29, the transplant was performed on her. Everything has been so fast, her surgery was so fast. Her recovery has been a miracle in how surprising it is to see how strong she is. It is really wonderful. I don’t know how to thank God for so much love for us, and the parents of the donors—may God bless them forever. Just as with the first transplant, we will forever honor them and keep them in our prayers.
Barely 12 days since her transplant, upon seeing how well her recovery was going, her catheterization perfect, her biopsy perfect, her doctors decided to discharge her. Incredible!!