Nicholas Lindblad was born on July 25, 2001. Two days later he was diagnosed with Hypoplastic left heart syndrome. A congenital heart disease that is characterized by the underdevelopment of the chambers on the left side of the heart. At 8 days old, Nicholas had the Norwood, the first of 3 shunts put in. At 6 months old he had the Glen, the second shunt and at 2 ½ years he had the Fontan the final shunt. These 3 shunts rerouted the blood flow so the only side of his heart used was the right side. At 3 years old he had to have his aortic arch replaced. Just 6 months later he was back on the operating table for a Tri Cuspid Valve repair. A year later the valve had to be replaced with a Bovine Valve. Three years later he had the valve replaced again with another Bovine valve.
At the age of 13, Nicholas started going through the process of more tests in order to determine the best approach for his ongoing serious medical condition. It was discovered through a series of testes that Nicholas also had a tumor on his upper spine that would need to be removed, and that he would not be stable enough for the surgery until after he received his transplant. On May 18, 2015, Nicholas was admitted into the CCU and placed on the transplant list as a level 1A. On July 2, 2015, the tumor on his spine shifted and his legs gave out. He developed severe pain and lost the ability to stand.
Eventually Nicholas received his heart transplant on August 3, 2015 after being on the transplant list for 77 days.
My husband and I needed to pack up our everyday essentials and move into the hospital with our son. I had to shut down my seamstress business which I have run out of our home. The loss of this income added extra stress onto our already overstressed lives. My husband continued to work 2 jobs 7 days a week. If we had other young children at home this would have been impossible for us to do.
Until now, we have not been able to find a charitable foundation that helps families like ours with their non-medical day to day living expenses.
When your child is in advanced heart failure fighting for their life, your number one priority is and should be them. When a child must endure a lengthy hospital stay, the most important thing is having his or her family with them. Ireland’s Hope can help make that possible.”